Appointments ahead

So the last few weeks have been really hectic.  Keelie went through several days of not eating and pocketing her food to the point of gagging and throwing up.  I am now believing she had the stomach virus.  She only got sick twice but she didn't eat for several days.  So I'm guessing she had an empty stomach.  And....the other 2 kids got the stomach virus 3 days after Keelie got sick.  She is better now and is eating a little better.  Yes she still puts food in her cheeks and spits out quite a bit but at least she is trying.  And you have to realize she can't really spit so the food has to fall out or I have to dig it out.  Yuck I know, but her mouth isn't strong enough for spitting.

Tomorrow we will be traveling to Jackson to see Dr. Omar, a geneticist.  He's actually seeing Ryland.  We decided to just go ahead and have him tested since he's so far behind in his speech.  Thankfully he's picked up a few new words lately.  I am encouraged.  Keelie will be going as well.  I want the doctor to put his eyes on her instead of me trying to tell him about her disorder.  This way he can see her and generate his own opinion about her disabilities.

Then next week we will be traveling to Memphis to see Dr. Hoehn.  Keelie's eyes have been crossing so we need a good check up.  Many kids with her disorder have issues with their eyes but if we get a head start on it then it won't be as bad as she gets older.

Then the week after that(Feb 27th) she will get her new braces.  We hope.  As long as they fit well.  We return to Memphis March 8th for a neurological appointment with Dr. McVicar.  And lastly, we travel to Kentucky April 4th for an assessment with the research group.  Whew....I'm tired.  LOL

Remember Keelie is 1 of 50 in the US and 1 of 150 in the world with her disorder.  I ask all my followers/readers to pray for us in the upcoming appointments because not many of these doctors know or understand Keelie's disorder.  So it's me educating them.  It can be frustrating at times.  I have all my information ready to present and I am prepared but sometimes new doctors don't appreciate me telling them about my child's problems.

I'm leaving you with a few pictures from the rodeo this past weekend.  Thanks to all of you who follow our journey.  We appreciate each and every one of you.