Well it's been an interesting week. Busy as always but Keelie has had some real issues with frustration. She has been crying a lot and trying to tell me what she wanted but I just can't seem to figure it out. I have always known what she was talking about or wanting until now. Tuesday is our busiest day of the week. Keelie cried from the time we left the house to the time we dropped off Cayden at school then to our first stop. I couldn't for the life of me figure out why. We had a few errands to run and she calmed down by the time we got in the parking lot. We went to therapy and everything went fine at physical therapy and speech therapy. She ate lunch and napped then we went to get Cayden and take her to dance. All was well until after supper. Me and the kids met my parents at Golden Horn restaurant to eat supper. Josh was out of town again so we decided to go out to eat. When we left the restaurant Cayden rode with my Mom to my house and Keelie and Ryland rode with me. I picked the phone up to call Josh and Keelie started crying/screaming "mine", over and over and over. I asked her one million questions to try to figure out what was wrong. I just couldn't figure out what she needed or wanted. We got home and I went to put her to bed still screaming "mine". I told her to take my hand and show me what she wanted (which often works when all else fails). Still nothing. Tried several times putting her to bed and she would get worse so finally my Mom rocked her to sleep. That was the only way she would settle down. She did this several more times during the week but not as bad as Tuesday. I pray she is not about to start going through some frustration problems, which is definitely possible.
Wednesday she had occupational and speech therapy. She did really well but she did have some issues with some of her exercises in OT. She is unable to lay down and prop on her elbows to write or color. She lays her head down on her arm. She is lacking the neck strength and trunk strength to hold her up. She measures a 12 month in her fine motor skill scores with OT. She did say one more new word this week. "tummy". Lol. So that's 3 words now she is saying well.
So to end my week I got a phone call from the geneticist at LeBonheur reminding me of an appointment scheduled with her on Monday, February 13th. I was unaware of this appointment. I talked to Dr. Ward in November and tried to see her in December when Keelie had her MRI, but she was too busy to see her. She told me her next appointment was not open til April. So I don't know when this appointment was made nor do I know why it was made but we are going. She may have the bloodwork results and won't to talk to us or maybe she decided to squeeze Keelie in to see her since she hasn't seen her since last July. I just don't know. My Mom and I are going to leave Sunday to head to Hernando to stay with my aunt. The appointment is at 9:40 so it makes sense to go a day early. So thankful we have someone to stay with. We are at the lake house this weekend so we are leaving from here. Josh couldn't go because he has to work. Glad my Mom was free. So I will let you all know how that goes.
Thanks for following the blog and for praying for Keelie. God answers.
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