Updates

Yes, I know it's been a long time since I've updated.  I'll try to keep it short and sweet.  Keelie has been doing really well.  She's putting 3-4 words together now.  Which is huge for her.  I love seeing her progress and its so much fun having a mini conversation with her.  She's so expressive.  It's just darn cute.  Lol.

She is still pretty weak.  She continues her occupational therapy and physical therapy.  Both are helping but there are still many things she can't do that she should be able to do at her age.  For instance, in PT she can't jump like a typical 3 1/2 year old.  In OT she still uses all her fingers to hold a pen, pencil, fork, etc.  she also hasn't really favored a side.  So we don't know if she is going to be right handed or left handed.  She has new braces coming in January 30th.  Her other braces are almost too small.  Her balance improves so much with her braces.

February 21st we go to her eye doctor.  Her right eye is not always tracking with her left eye.  Sometimes she will look a little cross eyed.  Hopefully it will be an eye muscle issue since she has hypotonia and nothing else.

Keelie had an EEG last October.  She was a trooper during the test.  Unfortunately her seizures have not gotten any better.  In fact, she said Keelie was having significant spikes in her occipital lobe.  We talked about Keelie's staring episodes.  I always referred to these as shut downs and never thought anything about it.  I would assume her feelings were hurt or she was just having a "girl" moment.  I was wrong.  These are mini seizures.  So the sad part to he story, an increase in medicine.  Boooooo.

Keelie did get the flu.  Fortunately, we were able to stay out of the hospital and treat her at home.

I helped teach  Keelie's class at church this morning.  Wow.....it's really an eye opener when I'm around other kids her age.  They are so much more advanced than her.  It really breaks my heart.  She talked a little, but not much.  There's one little boy in there who was born on the same day as her.  He seemed 2 years older than her.  These kids are also potty trained.  I don't worry about Keelie being behind near as much as I worry about other kids making fun of her.  It breaks my heart to think kids will mock her speech or laugh at her due to her inabilities.  I know kids don't understand her but it would be so much better if parents could explain to their kids that Keelie or any other child with a disability was born that way and they can't help it.  It would be great to have kids who accept her for who she is because she is a beautiful, fun, loving little girl.

I'll try real hard to update more often.  Please pray for Keelie and for us.  It takes a lot of patience for all of us.