Busy times

So we've been really busy with appointments lately. It's hard to stop and think these days. Our first appointment was with Keelie's eye doctor. She is now wearing glasses. Her eyes were starting to cross pretty bad so I thought we better follow up with her doctor. Keelie is significantly far sighted. Her lens strength is +3.25. The second appointment was with her neurologist. We see her every 6 months. This time we talked a lot about Keelie's nutrition. This led to a referral with a pediatric GI doctor. We then went to Kentucky for 4 days. We got a lot of information about some education criteria for Keelie. We also learned some new things but overall the trip was very informative. We were able to play a little while we were there. We returned on a Sunday and left on Thursday for a follow up with the eye doctor Friday. Then turned around and went back one more time for the GI doctor.

So this is where we are now. Keelie still has significant eating issues. The doctor believes she has secondary reflux and that the motility of her intestines is weak and slow due to her hypotonia. In other words, her stomach is not emptying. So this Monday the 29th Keelie will have a gastric emptying test and the 30th she will do a swallow study. Please say a prayer she cooperates and EATS.... She needs to eat for these test to work.

As far as the glasses go, well that was an adventure. LOL.... We finally found some glasses and frames that stayed on her face and that she will keep on. When we followed up the dr wasn't pleased with her progress and talked of increasing the strength. But she wants to give her 2 more months to see if her eye crossing improves. The switching of glasses may be why she still crosses because of not wearing the glasses like she was suppose to.

Keelie also got some new SMO's (braces for her feet). Remember the drama I went through with the first braces. Well this was much better, except the first pair was too small. So they retook measurements and ordered some more.

Keelie still continues her therapies and school at TK Martin. She has improved and is such a sweet child. We thank God every day for giving her to us. She is such a blessing.

Thanks friends for following the blog and praying for Keelie and our family. We love you all.